Thursday, July 22, 2010

If You are Wondering

 Today was Andrew's "big" day. Today was the big drive over the mountain to get his VMA and HVA levels checked. He is pretty laid back about it. He gets his Toy Story toys, his dee-dee (blanket), his snack, and little Spiderman back pack and heads out to the car. Today his sister was going with us to go to Occupational Therapy in Charlottesville, so he even had a buddy to sit next to and play with in the van on the way up. Madi and I dropped him and daddy off at the clinic and headed off. About an hour later we heard the news
 "Good news, " Rick said. The doctor thinks Andrew looks great and he thinks he is doing so well that he has bumped his scans further one month. And we only need physicals and urine checks each month, not blood. He determined that Andrew's HVA scores kept jumping up and down so randomly, that that wasn't a good indicator with what was going on inside. So, we will do another physical next month and then not do the scans until September, rather than August. And....we only have to do one day MRI's instead of a three day scan schedule with the MIBG. That is wonderful news. That means that Andrew looks so good and things are progressing so well that the head of Oncology at UVA is less concerned than ever. I got tears in my eyes immediately thanking God once again for sparing my son and running through the large amount of memories that I have of that hospital over the last 8 months. We are celebrating once again and so thankful for our son's good health record.
 Another bit of exciting information regarding our celebration. Andrew has been granted his Wish to go to Disney World and we leave October 11th (three days after his 3rd birthday) to fly down with the family for a week at Disney. We are very excited. We even get picked up in a limo at the crack of down to ride to Dulles. We will keep you updated on those details, but what a wonderful way to celebrate another year of Andrew's life and the victory we have!

3 comments:

  1. Hooray for great results! Isn't it strange to get so excited about urine tests:)

    Let the Disney countdown begin!!! We let the kids watch a few Youtube videos of Disney parades ahead of time. Someone recommended doing that as a way to prepare my young kids for how big the characters will look and some of things they will do. You can search under Disney parades and find some good ones. This worked really well for us and helped us all get VERY excited:)

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